THE SUPPORT ISSUE With so many Australians still in lockdown due to the pandemic, caring for each other is so important. Think about someone who might be of concern to you, and phone them, shoot them an email or send them a text. In this issue, we want to highlight a few tools to help […]
The World Bladder Cancer Patient Coalition August newsletter is out now.
The WBCPC August newsletter highlights news from WBCPC and members across the world. Read it here.
Small Cell Carcinoma of the Bladder
Last year on October 26th, I lost my dad to small cell carcinoma of the bladder which in case you didn’t know is very rare.
Victorian Urological Nurses Society (VUNS) Bladder Cancer Group – An Overview
By Marc DioceraGroup Coordinator, VUNS Bladder Cancer GroupGenitourinary Nurse Consultant, Peter MacCallum Cancer Centre The Victorian Urological Nurses Society (VUNS) Bladder Cancer Specialist Interest Group (SIG) is a sub-speciality group of advanced practice nurses caring for patients with bladder cancer. The group was originally formed by Victorian urology nurses in 2013 to address the issues […]
Cancer shock
I was diagnosed in February 2020 with Urothelial Carcinoma in my left kidney. I was 55 years old, female, very fit, never smoked and rarely drank. My husband and I were booked to go on a cruise the coming Saturday, but my oncologist said chemotherapy had to start straight away. Late 2019 i had consistent […]
Large cell neuroendocrine tumor in the bladder.
Hi everyone, my father has recently been diagnosed with large cell neuroendocrine carcinoma in the wall of his bladder. He is due to have a radical cyctectomy which will include taking the prostate and neighbouring lymph nodes next Tuesday. His treatment options afterwards are very slim as he has acute renal failure which he was […]
BladderCancer.org.au Newsletter – June 2020
Thank you to everyone who supported Bladder Cancer Awareness Month in May. We pushed hard on Twitter and Facebook during the month which led to record traffic on all platforms and record booklet downloads. We also received some nice donations in May. Thank you. We get no government funding so any help is appreciated. You […]
Bladder Cancer Infographics
Download six Bladder Cancer infographics in one PDF file courtesy of the World Bladder Cancer Patient Coalition.
WBCPC Start-up Guide for bladder cancer patient groups
The World Bladder Cancer Patient Coalition has launched its Start-up Guide for bladder cancer patient groups. Its an awesome document. If you want to get involved and start up a patient support group on Instagram, Facebook or other social media, or to start up a charity, this guide is a great place to begin your […]
Caring for my sister – Haematuria
My sister passed away last year after a short battle with bladder cancer. What I noticed when researching the disease, is that the most prominent symptom in the early stages is haematuria. Maybe my sister was a rarity, but she never had haematuria but she presented to her GP with high urination frequency.
2018 Bladder Cancer Diagnosis
I was diagnosed on the 22nd May 2018, I was 50 years of age. First and only symptom was haematuria. I went to my GP the day after this symptom, had a ultra sound 5 days after and I was diagnosed with high grade non muscle invasive cancer. My first surgery approx 4 weeks after. […]
Download the 2020 #BladderCancerAwarenessMonth toolkit
Want to do more to make the world #BladderCancerAware? Download the 2020 #BladderCancerAwarenessMonth toolkit created by the World Bladder Cancer Patient Coalition Download the English version of the tookit. The World Bladder Cancer Patient Coalition developed the campaign toolkit as a guide to help our member patient organisations, partners, and interested parties from all corners […]